#chronicillness

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Too many people judge the disabled for what we do to survive. The truth is you can’t fathom what it’s like to live in a body that’s betrayed you. To exist in legislated poverty with no reliable help or care. To be left by the wayside to die and abandoned by almost everyone. People will claim to understand. They will try and empathize. But then they say things like “if it were really that bad you would have support”. Or “you just have to try harder and get another doctor”. They don’t actually listen to us. They talk over us. They’re utterly convinced that they know better about our suffering, and that if we really wanted to get better we could. We simply don’t want it bad enough. Nothing could be further from the truth. Disabled people are incredibly resourceful. We’re surviving in a system doing its utmost to kill us. If “wanting” to get better was all it took, no one would be chronically ill. If support showed up whenever it was truly needed, no one would suffer. If healthcare helped, we would be lined up at the hospital doors. Please don’t judge what you can’t understand Try and realize it’s your own fear and denial that makes you need to believe everything is “fixable”… because you can’t fathom getting sick and never getting better Disability comes for almost everyone… help us build a better world #disability #ableism #eugenics #chronicillness
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If you’re still masking… thank you! It may feel lonely but you’re not alone Many of us are still wearing masks and trying to break chains of transmission As the world falls apart…protecting your health and the health of others is paramount It’s resistance & community care. https://nannyogg63.substack.com/p/what-its-like-to-be-masking-in-2026 #wearamask #longcovid #COVIDisAirborne #covidisnotover #chronicillness #disabillity
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URGENT. PLEASE BOOST FOR ME! As many of you know I'm recovering from recent surgeries and complications, and and also still dealing with after effects of three day migraine and a fibro flare. I'm unable to cook for myself currently, and have run out of easy meals to keep me going. As a disabled, chronically ill person who lives under the poverty line it would be much appreciated if you could help me reach my $80 goal so I can get a few more nutritious meals for the next few days as I continue my recovery(this goal will get me two meals a day for 6 days). Thank you so much. I appreciate you all♥️ #mutualaid #boostforreach #boostforreach #kindness #love #disabledmutualaid #disabled #disability #bigender #chronicillness #mutualaidspace #mutual #help #assist #leadiwthlove #kindnessmatters #lgbtqia #lgbtqiaplus #bisexual #spiritual #grateful #gratitude #littlejoys #MutualAidSavesLives #communitymatters #community #food #aid #transcrowdfund @mutualaidspace@mutualaidspace.org @mutualaid@fedigroups.social #appreciation #thanks #youreamazing #amazing #fedi #fedifriends #fediversehttps://ko-fi.com/aces_funhouse
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ME/CFS explained by ducks! A funny presentation of serious subject matter in less than one minute. Please watch / boost even if you don't have ME/CFS. Thank you! ❤️ From diploma.duck on Instagram: https://www.instagram.com/p/DeKkY5-xGkv Transcript in alt text, let me know if you find errors or important omissions - I tried to include all important details. @mecfs@fedigroups.social#MEcfs #PwME #ChronicIllness #AltText
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PLEASE BOOST FOR ME! It's spring in my corner of the world, and warming up quickly in the rush to summer. I rent my home, and while I have a portable air conditioner in the bedroom, in the high Aussie heat of summer of over 40C/104F, it's still far too hot in the rest of the house, and makes my disabilities and chronic illness worse. I have no aircon or fans in the rest of my tiny apartment, and with my disabilities and chronic illness, I could really use a fan this year, so I'm not shut in the bedroom constantly. I really need a 40cm, metal blade fan for it to be effective along with my usual cooling towel, cooling mat etc. I live under the poverty line, so this is out of reach for me. If you could help make it possible for me to get the fan I need, and help make spring and summer more bearable with disability and chronic health issues, it would be much appreciated. My goal is $99.95(cheapest one I can find and also free delivery to my door as I can't get to a store and cart one home due to disabilities). Thank you so much💖 #boostforhelp #MutualAidRequest #mutualaidspace #disabled #chronicillness #neurodivergent #lgbtqia #plural #bisexual #bigender #pluralgang #mutualaid #MutualAidSavesLives #summer #grateful #hope #love #disabilityrights #gratitude #thankful #smalljoys @mutualaidspace@mutualaidspace.org @mutualaid@fedigroups.social #thankyou #poverty #povertykills #heatkills #heatstrokeprevention #chronicpain #HeatIntolerancehttps://ko-fi.com/aces_funhouse
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No progress in 3 days, y'all. Can anyone match 50 or close to it? Thank you so much!! Blessings to you and your family! Can anyone match? https://chuffed.org/project/blessks vnm: skillingmesoftly pp: kshernandezinc #FatBearWeek #mutualaid #directaid #disabled #artist #queer #lgbtq @mutualaid@ovo.st @mutualaid@fedigroups.social @disabledvoices @lgbtq@tagpush.app @lgbtq@newsmast.community @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer @mutual_aid@hexbear.net @mutual_aid@starflower.space @MutualAidVisibility @anarchomutual@freeradical.zone @blackfedi@fedigroups.social
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Just had coffee. One cup coffee, one cup soy milk, 14g agave; I swapped out my favorite soy milk powder for organic unsweetened silk soy. To no ones surprise I have no sinus reaction. So unfortunately I will have to switch to the healthier more expensive less versatile milk option. I know I shouldn’t look at it as a negative, but it feels like a loss, yet another thing my conditions have taken from me. #health #inflammation #wfpb #vegan #chronicillness
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Errands run, dishes done, and bed made with fresh sheets so I can come home to a comfy bed after hospital. Having a little rest, and then we tackle some tidying. I have to fast from midnight, so I'm eating as much as I want until then, and have upped my water intake over the past day so that I give myself the best chance of staying hydrated, and not getting a migraine before surgery(or after, though I'm prone to them after anaesthetic). Resting in between tasks because pain is high, but feeling like I'm on track to being ready😁 #preparing #optimism #hope #focus #disability #chronicillness #chronicpain #hearthealth #kidneys #ptsd #fibromyalgia
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RE: https://me.dm/@kshernandez/116735297261197109 Not one jot, not one tittle received! The abusive environment persists, the abusive people remain. If you wanna see me out of this situation, chip in. Chuffed.org/project/blessks vnm: skillingmesoftly pp: kshernandezinc #mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @mutualaid@ovo.st @mutualaid@fedigroups.social @disabledvoices @lgbtq@tagpush.app @lgbtq@newsmast.community @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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Update: Y'all, where I live is becoming less and less safe by the day. The campaign in my Chuffed is meant to help me move and make it for a time This is urgent, I really need to get to a safe place Please do all you can! stalled at $4988/$7000 came in so far! #mutualaid #Chuffed #helpfolkslive #mutualaidrequest #housingcrisis #disability #Writer #Writinghttps://chuffed.org/project/blessks
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$211 over due for September STALLED - food and meds! Meds: 17 DAYS overdue Food: 3 days overdue I am diabetic and this adds a layer of danger. Im fatigued with brain fog. I just want food to keep my brain alert and on.. Even $5 is a HUGE help! Ty! V: d_fay Pp: peach77 #mutualaid #MutualAidSavesLives #MutualAidRequest #disabled #spoonie #chronicpain #chronicillness #crowdfund #lgbtq #queer #gay #poverty #artist #catmom @mutualaid@ovo.st @mutualaid@fedigroups.social @disabledvoices@newsmast.community @disability @lgbtq@tagpush.app @queer
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I need a very small portable washing machine that would be used only for socks. Can anyone suggest one? It has to be small enough that I can lift it and drain it myself. I can’t put my socks with my regular laundry & hand washing is no longer an option (dislocated wrist) I think this could be a huge spoon saver if I could find one that actually works. Help? #disability #chronicillness #ableism #washingmachine
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I am exhausted and limp and overheating, but I have finally taken a SHOWER. For days, our main bathroom has been inaccessible due to mold remediation, and I wasn't up to cleaning the dead bugs out of the shower in the backhouse. Today there was a final application of chemicals, and when I came back home, the vapors had dissipated enough for me to finally spend a few minutes back there. Now I'm damp and clean and moisturized and wearing pajamas for the first time in a week. Things will really be better when we can sleep in our bed instead of on living room furniture, but this feels like a nice step. Hey disease twins, is it POTS that makes you want to puke and pass out after a shower? Because something sure does. #ChronicIllness #IIH #POTS #Fibromyalgia #migraines #DiseaseTwins
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@ovaettr@denton.social Hey buddy, thanks for the thread! Still raising to move away from abusive home situation. Please, I need all the help I can get as fast as I can get it. Just under 2k to go to meet this goal! All is appreciated. https://chuffed.org/project/blessks vnm: skillingmesoftly pp: kshernandezinc #mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @mutualaid@ovo.st @mutualaid@fedigroups.social @disabledvoices @lgbtq@tagpush.app @lgbtq@newsmast.community @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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