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Ahimsa

@ahimsa_pdx@disabled.social

mastodon 4.7.3

Vegetarian, book lover📚
Living with ME/CFS since 1990 ♿️ She/Her
ME/CFS = myalgic encephalomyelitis / chronic fatigue syndrome

Please use #AltText on images/GIFs/videos ❤️

My posts, no boosts = @ahimsa_pdx@disabled.social@justmytoots.com

1557 Followers

758 Following

50 Posts

Joined November 19, 2022

Location:

Oregon

What is ME/CFS?:

https://s4me.info/threads/fact-sheet-1-introduction-to-me-cfs.51744/#post-596527

What is PEM? (Post-Exertional Malaise):

https://s4me.info/threads/fact-sheet-2-post-exertional-malaise-pem.51745/#post-606969

Ahimsa @ahimsa_pdx@disabled.social

· 2d ago

Boosted by @trending@homestead.social

It's frustrating to see people posting ableist comments when they criticize politicians. I just saw a comment saying Trump must need to wear a diaper. That is not the zinger that you think it is. Some disabled folks wear diapers or have colostomy bags. Why comment on someone else's body (weight is another common target) instead of their actions or policies? Please stop the ableist remarks. It shows how little you care about disabled folks. #Ableism #Disability #Politics

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Ahimsa @ahimsa_pdx@disabled.social

· 3d ago

Boosted by @trending@homestead.social

ME/CFS explained by ducks! A funny presentation of serious subject matter in less than one minute. Please watch / boost even if you don't have ME/CFS. Thank you! ❤️ From diploma.duck on Instagram: https://www.instagram.com/p/DeKkY5-xGkv Transcript in alt text, let me know if you find errors or important omissions - I tried to include all important details. @mecfs@fedigroups.social #MEcfs #PwME #ChronicIllness #AltText

Instagram

Instagram

Create an account or log in to Instagram - Share what you're into with the people who get you.

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Ahimsa @ahimsa_pdx@disabled.social

· 5d ago

Boosted by @trending@homestead.social

"Calling Flock a ‘weapon of mass inspection,’ Wyden backs Oregon ban effort" https://www.oregonlive.com/politics/2026/10/calling-flock-a-weapon-of-mass-inspection-wyden-backs-oregon-ban-effort.html?gift=13549e14-d950-48d7-8d64-1effc9d3b63f "A bipartisan effort in the Oregon Legislature to ban Flock cameras and similar devices statewide has received support from Democratic U.S. Sen. Ron Wyden and the Oregon chapter of the American Civil Liberties Union." #Oregon #Flock #Surveillance #Cameras #Privacy #Wyden #ACLU

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Ahimsa @ahimsa_pdx@disabled.social

· 2d ago

Replying to

@MaryAustinBooks@mstdn.social 😂

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Ahimsa @ahimsa_pdx@disabled.social

· 1mo ago

Boosted by @trending@homestead.social

I got both my COVID booster and my flu shot today. Please clap 👏 #COVID #CovidIsNotOver #Influenza #Vaccines

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Ahimsa @ahimsa_pdx@disabled.social

· 1w ago

Replying to

@debby@hear-me.social I'd have more faith if they'd also tested folks w/ non-fatiguing illnesses Plus this, from Chris Ponting: "Unfortunately, the 2026 study’s claims are impossible to evaluate because the computational methods they used are proprietary, locked within black boxes they term EpiSwitch® Analytical and Data Portals, Knowledgebase and Orion v1 anchor detection. Researchers are thus disallowed from reproducing this study independently." More here: https://www.sciencemediacentre.org/expert-reaction-to-study-investigating-shared-biological-mechanisms-between-me-cfs-long-covid-ptsd-rheumatoid-arthritis-and-multiple-sclerosis/ #MEcfs #LongCovid

sciencemediacentre.org

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Ahimsa @ahimsa_pdx@disabled.social

· 2w ago

Replying to

Missing Everything, Completely Frustrated, Sad #MEcfs #PwME

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Ahimsa @ahimsa_pdx@disabled.social

· 1w ago

Boosted by @trending@homestead.social

RE: https://masto.ai/@transworld/117351383195109089

Another quote from the article:

“I think we should just be honest,” she said. “This is about fundamental freedoms. This is about dignity for people, no matter who you love or how you identify.”

Michigan Gov. Gretchen Whitmer

Trans rights are human rights!

#Trans #TransRights #HumanRights #LGBTQ #LGBTQIA

Quoting

Transgender World

@transworld@masto.ai

Gretchen Whitmer to Democrats questioning their support for trans rights: ‘I’ve never wavered’ https://www.advocate.com/politics/national/gretchen-whitmer-hrc-transgender-rights?1 #transgender #trans #LGBTQ #LGBTQIA

Open quoted post

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Ahimsa @ahimsa_pdx@disabled.social

· 2w ago

Replying to

Multiple Exposures to COVID = Freakish Symptoms #MEcfs #PwME

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Ahimsa @ahimsa_pdx@disabled.social

· 1w ago

Replying to

@debby@hear-me.social I'll add that I really want the results from this research study to be true (I've had ME/CFS since January 1990) but I can't help but be a bit skeptical. I think biggest breakthrough in ME/CFS research that we've had lately is the DecodeME genetic study from last year: https://mecfsresearchreview.me/2025/08/11/decodeme-x-marks-the-spot-where-me-cfs-biology-can-be-discovered/ The next step for genetic research would be the Sequence ME & Long Covid study: https://www.actionforme.org.uk/research-campaigns/our-research-work/sequenceme-long-covid/ #MEcfs #LongCovid

mecfsresearchreview.me

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Ahimsa @ahimsa_pdx@disabled.social

· 1w ago

Replying to

@Sheril@mastodon.social I also use my library for DVDs & Blu-rays - so many movies and TV shows are available. And don't forget the library of things! https://www.youtube.com/watch?v=jqO5-T0WchA #Libraries #Community

Don't You (Forget About Things)

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Ahimsa @ahimsa_pdx@disabled.social

· 2w ago

Replying to

Memory Empty / Cannot Form Sentences #MEcfs #PwME

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Ahimsa @ahimsa_pdx@disabled.social

· 2w ago

Replying to

Mandating Exercise? Completely Fricking Senseless! This one is my little rant against doctors who suggest GET (graded exercise therapy). GET does not work and usually makes folks worse. This point is mentioned in this article if you want to read more: https://www.theguardian.com/commentisfree/2026/sep/24/abandoned-dismissed-and-gaslighted-me-sufferers-betrayed Archive version for those who avoid The Guardian: https://archive.is/R7fnL (thanks to @Rhube@wandering.shop ) #MEcfs #PwME

theguardian.com

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Ahimsa @ahimsa_pdx@disabled.social

· 2w ago

Replying to

Many Embarrassing Confusing & Frightening Symptoms #MEcfs #PwME

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Ahimsa @ahimsa_pdx@disabled.social

· 2w ago

Replying to

[Medical Education Failures Curse Sufferers] Oops, I got the letters in the wrong order due to cognitive issues! How about: Medical Education Completely Failed. Sorry! #MEcfs #PwME

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Ahimsa @ahimsa_pdx@disabled.social

· 2w ago

Replying to

My Employment Cut F*cking Short #MEcfs #PwME

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Ahimsa @ahimsa_pdx@disabled.social

· 2w ago

Boosted by @trending@homestead.social

TL;DR It's best to use a drop box to return completed mail ballots! "Oregon and Coos County officials push drop boxes amid mail delays" https://www.opb.org/article/2026/09/27/oregon-and-coos-county-officials-push-drop-boxes-amid-mail-delays/ "Oregon Secretary of State Tobias Read joined Coos County Clerk Julie Brecke at a town hall meeting in North Bend Thursday, where they urged voters to use ballot drop boxes for the November election and announced a new drop box expected to open in Charleston in October." #USPol #Oregon #Elections #Voting #VoteByMail #MailBallots

Oregon and Coos County officials push drop boxes amid mail delays

Oregon and Coos County officials push drop boxes amid mail delays

Oregon Secretary of State Tobias Read joined Coos County Clerk Julie Brecke at a town hall meeting in North Bend Thursday, where they urged voters to use ballot drop boxes for the November election and announced a new drop box expected to open in Charleston in October.

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Ahimsa @ahimsa_pdx@disabled.social

· 2w ago

Boosted by @trending@homestead.social

"I look fine, but dealing with chronic illness is my full-time job" https://www.publicsource.org/pots-long-covid-navigating-invisible-illnesses/ "My illnesses don’t show up on lab tests, nor do they affect my appearance. Some people think this makes them less real, but a few strong supporters keep me going." @mecfs@fedigroups.social @longcovid@fedigroups.social #LongCovid #MEcfs #POTS #ChronicIllness #InvisibleIllness #Disabiliity

I look fine, but dealing with chronic illness is my full-time job

Pittsburgh's Public Source

I look fine, but dealing with chronic illness is my full-time job

Jennifer McCalla doesn't look sick, but living with long COVID and POTS is a full-time job. She writes about invisible illness and the fight to be believed.

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Ahimsa @ahimsa_pdx@disabled.social

· 1mo ago

Boosted by @trending@homestead.social

Powerful video from Abdul El-Sayed, Democratic senate candidate from Michigan: "We're being told that if we sacrifice the rights of some people, then the rest of us get to keep our rights. We all know that's some BS." I'll put a link to the source and the full transcript in replies to this post. 1/n #USPol #USPolitics #TransRights #CivilRights #HumanRights #USSenate #Michigan

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Ahimsa @ahimsa_pdx@disabled.social

· 2w ago

Replying to

More quotes: "Americans often assume that any personal health information they share is protected by HIPAA, the federal privacy law that governs the handling of medical information. But the law generally only applies to specific types of health businesses, including medical offices, hospitals and insurers, not telehealth companies offering prescriptions, counseling, DNA tests and other online services." #USA #FTC #HIPAA #Privacy #Telehealth #Healthcare

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Ahimsa @ahimsa_pdx@disabled.social

· 1mo ago

Boosted by @trending@homestead.social

I was on the phone with a friend this evening and we were both grousing about Google. She already uses a different search engine (as do I) but then I told her about Open Street Map. She didn't know about it before - she was so excited! 😁 https://www.openstreetmap.org #DeGoogle #OpenStreetMap

OpenStreetMap

OpenStreetMap

OpenStreetMap is a map of the world, created by people like you and free to use under an open license.

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Ahimsa @ahimsa_pdx@disabled.social

· 2w ago

Replying to

Medical Excuses Continue - Funding Scarce! "ME/CFS is the most under-funded condition, receiving <1% of its YLD proportionate funding" source = https://www.nature.com/articles/s43856-026-01516-7 #MEcfs #PwME

Long COVID disability burden in US adults - Communications Medicine

Long COVID disability burden in US adults - Communications Medicine

Bonuck et al. quantified the disability burden of Long COVID in U.S. adults using years lived with disability and compared its NIH funding to that of 68 other conditions by sex predominance. Long COVID receives far less funding than warranted by its burden, with female predominant conditions consistently underfunded, implying that both disability impact and sex disparities should play a greater role in research funding decisions.

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Ahimsa @ahimsa_pdx@disabled.social

· 1w ago

Replying to

Here's a direct link to the No Kings map (for Saturday, Oct. 17) to save folks some clicks! Enter a city or zip code and the map will zoom in to show events near that location. https://www.nokings.org/#map #USPol #NoKings #Elections

No Kings

No Kings

For more than a year, millions of people have come together to send a clear message: in America, we have no kings. Power doesn't belong to billionaires, strongmen, or politicians who think they're above accountability — it belongs to the people, but only if we use it.

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Ahimsa @ahimsa_pdx@disabled.social

· 3w ago

Boosted by @trending@homestead.social

From NPR (no paywall) "The Supreme Court rejects Trump's mail voting restrictions for this year's midterms" https://www.npr.org/2026/09/14/nx-s1-5962190/supreme-court-mail-in-voting-trump "The Supreme Court has ruled against President Trump, rejecting his efforts to enact new mail-in voting restrictions for the midterm election. The ruling released Monday by the high court means the U.S. Postal Service is expected to continue delivering ballots as usual." #USPol #Elections #Voting #VoteByMail #USPS #SCOTUS #VoterSuppression #Resist

The Supreme Court rejects Trump's mail voting restrictions for this year's midterms

The Supreme Court rejects Trump's mail voting restrictions for this year's midterms

The Supreme Court has rejected the Trump administration's request to allow mail-in voting restrictions under a U.S. Postal Service plan for the midterm general election.

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Ahimsa @ahimsa_pdx@disabled.social

· 2w ago

Boosted by @trending@homestead.social

Thank you, Mayor Mamdani! "DoorDash to pay $131M for underpaying delivery workers in New York City" https://apnews.com/article/doordash-nyc-delivery-zohran-mamdani-4429800e7bf1b0ba28e064340b857df0 "The agreement, which officials described as the largest worker settlement in city history, also requires the company to submit to a new monitoring system to ensure compliance with delivery worker pay laws in the city." #USA #NewYork #DoorDash #Delivery #Workers

DoorDash to pay $131M for underpaying delivery workers in New York City

DoorDash will pay $131.5 million to settle claims that it underpaid delivery workers in New York City. Mayor Zohran Mamdani announced the agreement Tuesday.

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Ahimsa @ahimsa_pdx@disabled.social

· 2w ago

Replying to

Mental Exhaustion / Can't Find Solace #MEcfs #PwME

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Ahimsa @ahimsa_pdx@disabled.social

· 2mo ago

Replying to

@dbattistella@mstdn.ca My husband and I use tuta (@Tutanota@mastodon.social) for sending encrypted email. The account also includes a calendar. I started with a free account just to test it out and then moved to the paid tier to get some more features. No affiliation with the company, just a customer. #Email #Privacy #Encryption

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Ahimsa @ahimsa_pdx@disabled.social

· 2mo ago

Boosted by @trending@homestead.social

"‘Not about improving elections’: Oregon secretary of state slams new Trump election threats" https://www.opb.org/article/2026/07/21/oregon-election-threats-trump-tobias-read/ "Secretary of State Tobias Read urged Oregonians to turn their ballots in at dropboxes if they live more than 50 miles from the Portland area." Dropboxes are "an even safer, more reliable way because we don’t have to worry about the post office… That’ll go directly to the elections office." #USPol #Oregon #Elections #Voting #VoteByMail #Resist

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Ahimsa @ahimsa_pdx@disabled.social

· 2mo ago

Replying to

@alex@dair-community.social @emilymbender@dair-community.social Using "AI" to process 911 calls is so frightening! All the different facets you mentioned - the risk of errors, the lack of consent by the individual, no public knowledge that this was being done, the fact that 911 is the primary resource for emergency help - add up to a horrible situation!

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Ahimsa @ahimsa_pdx@disabled.social

· 2mo ago

Replying to

@jackdaniyel@mastodon.social I hate this so much! 😡 It's bad enough that all these corporate websites are full of tracking and advertisements. It's also bad to be using platforms run by companies that have done so many evil deeds. But it seems criminal when a government body (funded by taxes paid by citizens) posts public information on a website that *makes you get an account and login* before you can see the information!

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Ahimsa @ahimsa_pdx@disabled.social

· 2mo ago

Replying to

@beecycling@wandering.shop @elmiller0330@disabled.social Po-Tay-toes!

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Ahimsa @ahimsa_pdx@disabled.social

· 3w ago

Replying to

@MFennVT@mastodon.world Crossing my fingers for you! 🤞

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Ahimsa @ahimsa_pdx@disabled.social

· 2mo ago

Boosted by @MaryAustinBooks@mstdn.social

Free Geek email: "Free Geek is moving, and that means it's the perfect time to score some amazing deals on technology! Join us for our BIG Tech Sale and shop a wide selection of affordable laptops, desktops, monitors, computer accessories, networking equipment, vintage tech, and more." Saturday, July 25 11:00 AM – 3:00 PM Free Geek location: 1731 SE 10th Ave. Portland, OR #Portland #PDX #Laptop #Computer #Sale #FreeGeek

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Ahimsa @ahimsa_pdx@disabled.social

· 2mo ago

We took a trip a few weeks ago and one of the gardens we visited had posted this sign. I was very happy to see it! 😁 Source for the sign: https://www.ilrc.org/community-resources/know-your-rights #USPol #Immigration #NoIce #FuckICE #KnowYourRights

Know Your Rights | Immigrant Legal Resource Center | ILRC

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Ahimsa @ahimsa_pdx@disabled.social

· 2mo ago

Heads up for those brave folks who are trying to download and save information from US government websites - the NIH has announced changes to their websites. No idea whether this means data will be deleted or just rearranged but I thought I'd post about it here. https://www.nih.gov/web-modernization #USPol #NIH #Science #HealthCare #Research #MedMastodon #Resist

National Institutes of Health (NIH)

Web Modernization

[Enter summary here]

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Ahimsa @ahimsa_pdx@disabled.social

· 1mo ago

Replying to

@NDK@mastodonapp.uk @Tutanota@mastodon.social The encrypted calendar has been so useful for us. It can be updated from my phone, husband's phone, my laptop, his computer, etc. Makes coordination much easier.

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Ahimsa @ahimsa_pdx@disabled.social

· 2mo ago

Replying to

@Overgoddess@bardicperspiration.club Agreed!

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Ahimsa @ahimsa_pdx@disabled.social

· 2mo ago

Replying to

@calendsofapril@kolektiva.social I thought #Alt4Me was the hashtag to use when asking for help with alt text? (sometimes #AltForME but I think that one's fading out) And #Alt4You was used when adding alt text in a reply to a post with an image/GIF/video that has no alt text? Maybe either one works? I might have it wrong.

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Ahimsa @ahimsa_pdx@disabled.social

· 2mo ago

Replying to

@glassbottommeg@mastodon.gamedev.place Yes! I borrow a lot of DVDs and Blu-Rays from my library. My closest branch is tiny but I can get anything available in the whole county library system shipped to my local branch! 😁 #Libraries #Library #Movies

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Ahimsa @ahimsa_pdx@disabled.social

· 2mo ago

Replying to

@sk@catcatnya.com That's a great photo. Kudos to your grandma!

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Ahimsa @ahimsa_pdx@disabled.social

· 2mo ago

Replying to

@literalgrill@sakurajima.moe So true 😢

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Ahimsa @ahimsa_pdx@disabled.social

· 2mo ago

From #MEAction for Severe ME Day (Aug. 8) "Honoring Severe ME Day & Sharing our Severe ME Artists Project 2026" https://www.meaction.net/post/honoring-severe-me-day-sharing-our-severe-me-artists-project-2026 "#MEAction is proud to share the Severe ME Artists Project 2026! ... over 100 of you submitted photos, drawings, writing, and videos of your work! We debuted this project in 2021 and five years later we continue to be humbled and honored to bring you the work of the Severe ME community" 1/3 @mecfs@fedigroups.social #MEcfs #SevereME #SevereMEcfs #PwME #Art #Disability

Honoring Severe ME Day & Sharing our Severe ME Artists Project 2026

Honoring Severe ME Day & Sharing our Severe ME Artists Project 2026

#MEAction is proud to share the Severe ME Artists Project 2026-check out the video & gallery!

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Ahimsa @ahimsa_pdx@disabled.social

· 2mo ago

Replying to

@KydiaMusic@mastodon.social Oh no, I forgot to pace myself ... Cuteness overload! 😻

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Ahimsa @ahimsa_pdx@disabled.social

· 2mo ago

Replying to

@Voline@kolektiva.social @rgarner@mastodon.social Absolutely! 😴

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Ahimsa @ahimsa_pdx@disabled.social

· 5d ago

Replying to

@iBallesty@mastodon.ie @debby@hear-me.social I have no medical background so I rely on the Science For ME forum (s4me.info) for a lot of information about ME/cfs. Here's the forum thread where members are discussing this paper (since the pre-print) in case anyone is interested: https://s4me.info/threads/beyond-genes-episwitch%C2%AE-orion-platform-powered-3d-genome-architecture-biomarkers-reveal-shared-biology-across-me-cfs-lc-ptsd-ra-ms-2026-hunter.52050/ It's a public thread, no need to log in to read.

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Ahimsa @ahimsa_pdx@disabled.social

· 2w ago

Replying to

May Exhibit Crankiness, Frustration, Sarcasm #MEcfs #PwME

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Ahimsa @ahimsa_pdx@disabled.social

· 1mo ago

Replying to

@NDK@mastodonapp.uk I've been happy with Tuta (@Tutanota@mastodon.social ) - has encrypted mail and calendar.

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