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  'Nobody knows what to do': How Long COVID left Physics Girl searching for answers Article https://www.kpbs.org/news/arts-culture/2026/10/21/nobody-knows-what-to-do-how-long-covid-left-physics-girl-searching-for-answers Podcast https://www.kpbs.org/podcasts/the-finest/physics-girl-spent-her-life-explaining-science-then-science-couldnt-explain-her-illness Screenshot from latest Science for ME weekly update #LongCovid #MEcfs #PwME #CFS @mecfs@fedigroups.social @longcovid@fedigroups.soc...

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  "What it’s like to be masking in 2026" "In which I answer the burning question everyone is asking – 'why are you still masking in 2026'?" https://nannyogg63.substack.com/p/what-its-like-to-be-masking-in-2026 She has ME/CFS and asthma herself but it's a general article #masking #MaskUp #Covidisairborne #CovidIsNotOver @mecfs@fedigroups.social @longcovid@fedigroups.social #MEcfs #LongCovid #PwME #CFS @NoVID@chirp.social #novid #chronicillness

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  News Release 8-Jul-2026 Eye problems after COVID-19 can now be explained https://www.eurekalert.org/news-releases/1134768 "The impaired pupil function was furthermore linked to headaches, difficulty reading text & in focusing the eyes" It would be interesting to know how many had general fatigue, PEM, etc. People with ME/CFS can suffer from eye problems. Hashtags: @longcovid@fedigroups.social #LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghauler...

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  Low Vasopressin in Myalgic Encephalomyelitise/Chronic Fatigue Syndrome Vasopressin is also known as antidiuretic hormone https://www.endocrinepractice.org/article/S1530-891X(25)01349-7/fulltext Screenshot from AMMES October 2026 newsletter #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs@fedigroups.social

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  Health is Political by Brittani James “Long COVID Changed Everything” https://www.blog.brittanijamesmd.com/p/long-covid-changed-everything Description from Science for ME @s4me@universeodon.com update: Good blog post by Family Medicine physician Dr. Brittani James on what illnesses such as #LongCovid & ME reveal about medicine's limits. #pwme #mecfs @mecfs@fedigroups.social @longcovid@fedigroups.social

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  I was one of a number of patient scientists and advocates who was interviewed for this sympathetic, open access paper "Patient's knowledge, doctor's ignorance: The production of knowledge about myalgic encephalomyelitis" https://www.sciencedirect.com/science/article/pii/S003936812600110X?via%3Dihub #MEcfs #PwME #epatient #epatients #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs@fedigroups.social

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  Living a rock ‘n’ roll life: doing laps of the local green air (300 metres) to check battery length of my electric wheelchair! 😜 Didn’t get a great angle for this photo when I was taking one of many breaks lying on a bench. #MEcfs #PwME #MyalgicEncephalomyelitis #SpoonieLife #ChronicLife @mecfs@fedigroups.social

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  As many of you already know, George Monbiot has published another hard-hitting article on ME in the Guardian today. Great to see such coverage especially as the Guardian published some rubbish by others before https://www.theguardian.com/commentisfree/2026/sep/24/abandoned-dismissed-and-gaslighted-me-sufferers-betrayed #MEcfs #PwME @mecfs@fedigroups.social

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  "I would be here if I could" travelling art installation by artist Alison Larkman https://www.iwouldbehereificould.com/ https://meassociation.org.uk/2026/09/i-would-be-here-if-i-could-me-association-trustee-attends-mirrorbox-event-at-the-royal-opera-house/ Screenshot from latest Science for ME weekly update #MEcfs #LongCovid #PwME #CFS @mecfs@fedigroups.social @longcovid@fedigroups.social

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  Zoe Sirotiak – a person with ME/CFS, researcher, and physical therapist – has published a paper on how the societal expectation for people who are unwell to “get better” can create harm for people with chronic diseases, like ME/CFS. Read more: https://bit.ly/4irwxOp #mecfs #cfs #pwme @mecfs@fedigroups.social

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  Therapy via Messaging https://chroniclivingtherapy.com/insights-text-based-therapy/ Screenshot from latest edition of the Chronic Living Therapy email bulletin #MEcfs #Spoonies #PwME #Spoonie #SevereME #LongCovid #CFS #chronicillness @mecfs@fedigroups.social @longcovid@fedigroups.social #POTS @pots@fedigroups.social

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  🧵 ME Research UK We are deeply appreciative that the community has shared their experiences with us. Those detailing the devastation of cognitive dysfunction in ME/CFS are both moving and profoundly informative. https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/ #MEcfs #PwME #CFS #BrainFog @mecfs@fedigroups.social 1/

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  News Release 2-Sep-2026 Scientists uncover shared biology behind profound fatigue in five major illnesses https://www.eurekalert.org/news-releases/1142275 Paper: https://link.springer.com/article/10.1186/s12967-026-08874-9 UK Times article (paywalled) https://www.thetimes.com/uk/healthcare/article/me-long-covid-chronic-fatigue-illnesses-x6rm6w5wf #MEcfs #LongCovid #PwME #CFS @mecfs@fedigroups.social @longcovid@fedigroups.social 1/

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  “The Relentless Work of Being Sick” “A new book examines the labor of getting chronic illness diagnosed and treated—for those lucky enough to get care.” https://www.motherjones.com/media/2026/09/rogers-sick-work-duke-press-qa-interview-chronic-illness/ #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs@fedigroups.social #spoonie

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  “French state health insurance updates classification of chronic fatigue [syndrome]” “Illness is no longer classified as psychological” https://www.connexionfrance.com/news/french-state-health-insurance-updates-classification-of-chronic-fatigue/809609 #MEcfs #CFS #PwME @mecfs@fedigroups.social

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  Todd Davenport PhD’s thread on ME/CFS vs Long Covid https://threadreaderapp.com/thread/2091621187394871762.html #MEcfs #LongCovid #PwME @mecfs@fedigroups.social @longcovid@fedigroups.social

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  Using advanced MRI techniques, ME Research UK-funded researchers at Griffith University have detected subtle alterations in brain tissue microstructure in ME/CFS & long COVID, supporting the idea that the illnesses share underlying neurological features https://bit.ly/4i8mYn9 #MEcfs #LongCovid #CFS #PwME @mecfs@fedigroups.social @longcovid@fedigroups.social

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  🧵 ME Research UK: Careers, relationships, family life, hobbies, basic tasks – PEM can tear through it all. The sheer symptom burden and ripple effects can impact mental health. We urge anyone in distress to consider reaching out to appropriate organisations e.g. Mind (https://mind.org.uk) #MEcfs #PwME #CFS @mecfs@fedigroups.social 1/

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  From the Netherlands Wearable Heart Rate Variability Monitoring, Autonomic Dysfunction and Post-exertional Malaise in Long COVID: An Observational Study https://link.springer.com/article/10.1007/s40279-026-02487-4 Screenshot from latest Science for ME weekly update @longcovid@fedigroups.social #LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #HRV #MEcfs #PwME #CFS #ME #MyalgicE @mecfs@fedigroups.social

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  From Germany 🇩🇪 Cerebral gray matter volumes in long-term post-COVID patients are associated with peripheral kynurenine pathway metabolites and the severity of depressive symptoms https://www.sciencedirect.com/science/article/abs/pii/S0889159126006665 Screenshot from Science for ME weekly update #LongCovid #COVIDBrain #NeuroPASC #postcovid #PASC #PwLC #postcovid19 #PostCovidSyndrome @longcovid@fedigroups.social

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  From the US 🇺🇸 Plasma Cytokine and Caspase-1p20 Profiles in Pre-Pandemic and Long COVID-Associated Postural Orthostatic Tachycardia Syndrome https://www.mdpi.com/2227-9059/14/7/1605 Screenshot from Science for ME weekly update #LongCovid #POTS @longcovid@fedigroups.social @pots@fedigroups.social

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  Rob Wüst, corresponding author of the new paper: "Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest" https://www.nature.com/articles/s41467-026-75725-y Link to his full post https://www.linkedin.com/posts/rob-w%C3%BCst-74b13431_skeletal-muscle-properties-in-long-covid-share-7487754143374184449-tcqs/ #MEcfs #LongCovid @mecfs@fedigroups.social @longcovid@fedigroups.social

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  Great to have this research with such a useful control group: Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest https://www.nature.com/articles/s41467-026-75725-y #MEcfs #LongCovid @mecfs@fedigroups.social @longcovid@fedigroups.social

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  "Glandular fever*’s not just the ‘kissing disease’...The risk of chronic fatigue [syndrome] means the ‘kissing disease’ should not be downplayed. Experts say there can be long-term consequences" https://www.theaustralian.com.au/health/medical/glandular-fevers-not-just-the-kissing-disease-as-kaylee-mckeown-found-out/news-story/c97eaf0b87503ffc9db4a4abe0aeee6d?amp Archive https://archive.is/4Tf0p *aka Mono #MEcfs #PwME #CFS #ME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs...

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  From Prof Chris Ponting on Bsky: UK people with Long Covid or ME/CFS: please consider helping the HERITAGE project. They need to recruit 1,000 people who have not accessed an NHS specialist service within the last 3 years. https://heritage.leeds.ac.uk/join/ #mecfs #longcovid @mecfs@fedigroups.social @longcovid@fedigroups.social

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  Proposed Framework for Personalized Severity Assessment in ME/CFS to Capture Variation in ME/CFS Severity and Life Impairment across Patients and Time (2024) https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1369295/full #MEcfs #CFS #PwME #SevereME #SevereMECFS #SevereCFS #VerySevereME @mecfs@fedigroups.social

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  From Italy 🇮🇹 Vagal cholinergic denervation of the gastric mucosa in Long-COVID-19: in vivo evidence of structural autonomic dysfunction https://www.ijidonline.com/article/S1201-9712(26)00608-9/abstract Screenshot from latest Science for ME weekly update Hashtags: @longcovid@fedigroups.social #LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers

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  ME Research UK: A study exploring experiences of pacing with a heart rate monitor for people with ME/CFS has been published in the Journal "Fatigue: Biomedicine, Health & Behavior". Find out what the research team learned here: https://tinyurl.com/phymsee4 #mecfs #pwme @mecfs@fedigroups.social

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  New research from sympathetic & knowledgeable Physios for ME team et al. Experiences of pacing with a heart rate monitor for people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Free fulltext: https://www.tandfonline.com/doi/full/10.1080/21641846.2026.2681411 #MEcfs #PwME #ME #MyalgicE @mecfs@fedigroups.social

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  Study finds melatonin may ease chronic pain Melatonin shows promise as low-cost pain relief option for musculoskeletal pain. https://www.sydney.edu.au/news-opinion/news/2026/07/01/study-finds-melatonin-may-ease-chronic-pain.html Free full text: https://journals.lww.com/pain/fulltext/9900/efficacy_and_effectiveness_of_melatonin_for_the.1225.aspx #ChronicPain #Sleep #Melatonin