2026-10-11 06:57 UTC
Ive had long COVID now for 57 months. Some stray thoughts emerged today.
The first 3 years were the worst. Exhausted, debilitated, unable to work, struggling to deal with a medical system that still has no fucking clue. Scared AF that it would be permanent. Not much of that has changed.
In Nov 2024 I gave up the pretence of working, spent 3 months researching everything about Long COVID, and built myself a treatment plan to target all known theories.
https://medicine.yale.edu/news-article/potential-new-treatment-for-brain-fog-in-long-covid-patients/
Guanfacine & NAC+ on top of the existing medication started to make a difference and over the next 6 months things began to improve.
But in my excitement I overloaded my body and it returned with a vengeance. Nov/Dec I wiped out and was back where I started.
The same thing this year in July, juggling changes at work and at home lead to August where I was barely able to move on holiday.
A 2 hour walk was just too much. A conference would wipe me out for 3-4 weeks afterwards. Pacing and knowing my limits is critical.
There is a sorrow for the loss of mental acuity, physical capacity, and knowing that it probably will never return.
But there is also gratitude that I have in part recovered, to a point where most people will not realise that I am in fact disabled, that I can spend time with my family, and in the mountains, to do the work and FLOSS development that I love. Just in moderation.
Replies (0)
No replies.