Post by @ahimsa_pdx@disabled.social

2026-10-03 18:30 UTC

@debby@hear-me.social I'd have more faith if they'd also tested folks w/ non-fatiguing illnesses Plus this, from Chris Ponting: "Unfortunately, the 2026 study’s claims are impossible to evaluate because the computational methods they used are proprietary, locked within black boxes they term EpiSwitch® Analytical and Data Portals, Knowledgebase and Orion v1 anchor detection. Researchers are thus disallowed from reproducing this study independently." More here: https://www.sciencemediacentre.org/expert-reaction-to-study-investigating-shared-biological-mechanisms-between-me-cfs-long-covid-ptsd-rheumatoid-arthritis-and-multiple-sclerosis/ #MEcfs #LongCovid

Replies (2)

@ahimsa_pdx@disabled.social 2026-10-03 18:46

@debby@hear-me.social I'll add that I really want the results from this research study to be true (I've had ME/CFS since January 1990) but I can't help but be a bit skeptical. I think biggest breakthrough in ME/CFS research that we've had lately is the DecodeME genetic study from last year: https://mecfsresearchreview.me/2025/08/11/decodeme-x-marks-the-spot-where-me-cfs-biology-can-be-discovered/ The next step for genetic research would be the Sequence ME & Long Covid study: https://www.actionforme.org.uk/research-campaigns/our-research-work/sequenceme-long-covid/ #MEcfs #LongCovid

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@debby@hear-me.social 2026-10-03 19:05

@ahimsa_pdx@disabled.social Thank you for sharing. I’m disappointed, science should be open. Locking it behind Intellectual Property is a disservice to both science and humanity!

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