2026-10-10 04:24 UTC
I know some of you take a keen interest in my health, esp my Twitter immigrants of 2022 followers that came over to the fediverse when I did,
In the past year there has been a noticeable progression of the disease in the studies but still much slower than the average.
I take that as a win. I thought, based on issues that I was having, the results were going to be much worse.
The prediction, based on comparison studies of me over the past decade, is to expect some marked decline in my motor skills and increased, debilitating autonomic intolerance and disruption. Honestly didn't think there could be much more intolerance and disruption.
The autonomic system regulates the things your body does on its own and how it compensates to stimuli in order to protect itself, on its own.
I also lost 47 pounds so they are changing my feeding tube regiment.
Still, yet, these are good results.
Replies (3)
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@MaryAustinBooks@mstdn.social 2026-10-10 16:49
@paul@oldfriends.live I'm so sorry you're dealing with this, but your courage is truly inspiring. ❤️
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@Jason844@mastodon.social 2026-10-10 04:33
@paul@oldfriends.live Glad to hear you're still doing OK! Keep fighting! Best regards to Penney also.
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@sisterratched@social.vivaldi.net 2026-10-10 07:09
@paul@oldfriends.live Mostly good news then Paul..😃